Half Way Point For Participant Recuritment

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We are now well over the half way point of our participant recruitment target with over 500 Participants consented from 26 GP Surgeries

Further updates on study progress, results and publications will be available on this website in the near future.

All Site Initiations Complete

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We have now completed all of our site initiations for the IPCAS study!

We have recruited 46 GP Surgeries ranging across Norfolk, Suffolk, Cambridgeshire, Bedfordshire, Essex, Northamptonshire, Lincolnshire and Leicestershire and all have had their site initiations within our estimated time frame.

Further updates on study progress, results and publications will be available on this website in the near future.

Read our review exploring why stroke survivors and carers feel abandoned

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The article entitled: “Stroke survivors’ and informal caregivers’ experiences of primary care and community healthcare services – A systematic review and meta-ethnography” was recently published by PLOS ONE. The article was written by Dominika M PindusRicky Mullis, Lisa Lim, Ian WellwoodViona Rundel, Noorazah Abd Aziz,and Jonathan Mant

The study suggests that primary care and community health care interventions which focus on improving active follow-up and information provision to patients and caregivers, especially in the first year after stroke, could help improve patient self-management and increase stroke-specific health literacy.

You can find the full article published here.

Stroke survivors and caregivers feel abandoned by health services, study finds

IPCAS Pilot complete

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All enhanced stroke reviews and participant follow-up questionnaires for the IPCAS pilot study are now complete. A total of 13 stroke survivors were recruited from one GP practice in the East of England. Feedback from participants was positive and the IPCAS intervention was found to be acceptable to General Practice staff.

Further updates on study results and publications will be available on this website in the near future.

Ethical approval for the IPCAS Randomised Controlled Trial

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A favorable ethical opinion was given by the Yorkshire & The Humber, Bradford Leeds Research Ethics Committee for the IPCAS RCT on the 19th December 2017. The study will be called: “Improving Primary Care After Stroke (IPCAS): A randomised controlled trial to evaluate a new model of care for stroke survivors living in the community”. You can find out more about the study here.

MLAS Pilot complete

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All of the community based group sessions running as part of the “My Life After Stroke” pilot study have now been successfully completed. The feedback from participants has been extremely positive and we are excited to continue to develop this intervention. Further updates on study results and publications will be available on this website in the near future.

Chartered Society of Physiotherapy, variations in community stroke rehab.

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A press release published on 21 October 2016 by the Chartered Society of Physiotherapy discusses the inconsistencies in stroke care. This commentary focuses mainly on the need to address long term care and calls for investments in Early Supported Discharge services.

A protocol for a scoping review, accepted for publication by BMJ Open

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We are pleased to announce that the article entitled: “Primary care interventions and current service innovations in modifying long-term outcomes after stroke: a protocol for a scoping review” has now been accepted for publication by BMJ Open. The article was written by Dominika M Pindus, Lisa Lim, A Viona Rundel, Victoria Hobbs, Noorazah Abd Aziz, Ricky Mullis and Jonathan Mant.     read more…

Qualitative studies complete!

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The IPCAS team is excited to announce that all of our planned qualitative studies have now been completed. The interview and focus group transcripts will now be analysed and used to inform the development of the new model of primary care.

The 2nd European Stroke Organisation Conference 2016

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Dr Dominika Pindus will be presenting two posters based on our systematic qualitative review findings at the ESOC event in Barcelona, 10-12 May 2016. These posters cover both stroke survivors’ and carers’ experiences and need for primary care and community health services.